✨Rare Disease & Complex Care | Advocacy & Support
Kirsten Norgaard Consulting
Advocacy • Strategy • Solutions for Rare & Complex Care
I’m Kirsten Norgaard — but you might know me better as Kit, founder of Kit’s Apothecary. Many of you know me for my handcrafted remedies and gentle approach to health. But what you may not know is why I do this work, and what else I do beyond the apothecary shelves.
Years ago, I found myself in the middle of every parent’s nightmare — my child was born with a life-threatening condition that doctors didn’t fully understand. I learned fast that navigating rare and complex conditions is overwhelming — insurance denials, long nights researching, endless calls trying to find answers when the system has none.
I refused to accept that “there’s nothing more we can do” would be the end of our story. So I became an advocate — not just for my own family, but for thousands of others. For over 17 years, I’ve stood beside families who hear the words “rare,” “complex,” or worse — “we don’t know.”
Through my consulting work, I help:
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Families and patients who need strategy and care coordination when the system says “no.”
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Nonprofits and coalitions designing powerful advocacy campaigns or tackling big policy challenges.
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Health and research teams who want to build community trust and keep patients at the center of the work.
What I do looks different for everyone. Sometimes it’s a late-night call with a mom who needs help getting Medicaid to approve a treatment. Sometimes it’s writing letters to a governor to unlock life-saving care. Sometimes it’s helping a family find the one specialist who can finally bring hope.
And I do it because no one should face these battles alone.
When rare, complex, or overlooked conditions disrupt your life, navigating the system alone shouldn’t be your only option. Kirsten Norgaard is a nationally recognized rare disease advocate, policy strategist, and Harvard-trained health coach. She offers consulting services for individuals, families, nonprofits, and organizations facing high-stakes medical, policy, or care coordination challenges.
Who I Work With
- Families & Patients: For complex, rare, or undiagnosed conditions that need strategy and coordination.
- Nonprofits & Coalitions: Advocacy campaign design, policy navigation, and legislative strategy.
- Health & Research Initiatives: Guidance on patient-centered development, community trust, and stakeholder engagement.
What I Offer
- One-on-One Consulting: In-depth intake and a personalized roadmap for complex cases.
- Legislative & Policy Support: Drafting, outreach, and strategic positioning.
- Rare Disease Navigation: Funding, clinical trials, Medicaid, insurance barriers.
- Health Coaching Add-On: Whole-person support to complement medical care.
How It Works
- ✔️ Limited spots for high-touch, ongoing support
- ✔️ Personalized, practical, and deeply informed guidance
Why Work With Me
- 17+ years in rare disease advocacy
- Co-Founder of Adrenal Insufficiency United
- Proven record securing Medicaid wins, legislative victories, and treatment access worldwide
- Compassionate, realistic, and results-driven
What Others Say
“Kirsten Norgaard is an AMAZING human, healer, and friend. My family has been blessed to have her in our lives and as part of our health care team. Several years ago, we moved to the Oregon coast looking for answers and to help ease my oldest son’s complex chronic conditions, including POTS Syndrome, Thalassemia, immunodeficiency, iron-deficient anemia, chronic microcytic anemia, complex hearing loss, and now Long Covid… our prayers were answered when we found Kit. Her unwavering faith and support helped us find even more help when she started a GoFundMe campaign so that we could afford to get him to Mayo Clinic and find the one medication that has changed his life!
Her expert insight and suggestions have been a consult we rely on. She has also helped my father with autoimmune issues including diabetes and rheumatoid arthritis following Covid. It is so inspiring to watch her advocate for so many, including her son with autoimmune issues, and the way she has lobbied and helped change healthcare in Oregon and beyond. She is one of the biggest assets we have found, not only professionally but personally, and her work has helped thousands to know they are not alone. She is steadfast, kind, compassionate, and we consider her FAMILY.”
— Jimee Sue Boltz, Montana
“We honestly don’t know where we’d be without Kirsten Norgaard. When our son was diagnosed with Retinoblastoma our world collapsed, and every door we tried to open for treatment felt locked. Kirsten was instrumental in guiding us through the system. She found us a better treatment option out of state, helped us appeal to Medicaid across borders, and even got our case in front of both of our senators and the governor. Because of her, we got approval when we were told it wasn’t possible. She organized travel logistics, connected us with fundraising resources, and checked in with us when we were falling apart. When we couldn’t advocate for our son ourselves, she stepped in and spoke directly with the medical team confidently, calmly, and always with our child’s best interest at heart. Kirsten is the reason we had hope. She is a dedicated advocate, and for us she was a lifeline.”
— Devyn's Parents
Get In Touch
When your case can’t wait, neither should you.
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